The first couple of years of Nathan’s life was all about survival. Not just in the actual definition of the word – but also in the crazy, race against time, do the most we can while he’s still young, giving it 150% all the time – type of way. Nathan was priority 1, 2, 3, [...]

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This was probably the hardest lesson that I’ve learned in this journey, and I think it may arguably be the most important one. When Nathan was 2 weeks old, he started crying uncontrollably, day and night. It was a shrill, painful scream that would break your heart. We took him to the doctor who sent [...]

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I remember when I started my journey with Nathan, I felt SO overwhelmed. There was so much to learn, and I didn’t think I could ever figure it all out, much less where to start. There was so much to learn about – therapies, medical issues, equipment, advocating, daily care, etc. But here I am, [...]

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