I think I’ve been a bit unclear in the last few posts so this post will be all about clarifications:
* http://www.prayfornathan.org/blog/caught-sleeping-on-the-job.html Nathan is in the middle of suit therapy in this picture. The therapist was stretching him. He was so exhausted that he conked out while being [...]

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From Random

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Most of the time I talk about therapies that work on physical abilities, and you hear very little about “communication”. There are 2 reasons for this: 1. The whole “communication” field is daunting and overwhelming to me! 2. Kids develop physical skills before they develop [...]

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The youngest Starbucks addict?
Nathan and his soy chai latte.

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A bit of an update on us:
* The boys have been back in Irvine since Sunday and are having a blast! Nathan has been remarkably tolerating 4 hours of suit therapy plus 2 hours of HBOT every day. I never thought he’d have the stamina – he [...]

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My boys, safely and happily at home for the night. They came home a day early because Owen has to take care of work stuff. I was thrilled to see them. Nathan was beaming with happiness and I can tell how much he thrived from spending these [...]

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Nathan has now completed 12 Hbot dives!
Today when I talked to him on the phone, I told him how much I missed him. I asked him if he missed me too. I heard a very very clear “Yeaaaaaaaaaaahhhhhhhhhhh”. He was so sweet!
Daddy reports that [...]

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My friends, I have an important announcement to make:
My MOM is now a BLOGGER!
She has a fabulous blog up which I promise you will enjoy.
365 Projects
Please stop by and check out her articles, they are fabulous! And if you like what she’s writing, follow her on twitter and/or add [...]

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I talked to Owen a little while ago and he said they had another fabulous day. 2 dives, 3 hours of suit therapy, and a whopping GFCF meal at PF Chang’s. He said Nathan was really happy the whole day and he didn’t hear a peep of complaining [...]

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Lately I’ve been thinking in “bits” and I think I will write in here more “bit-like” blogs. So here are today’s bits:
* Nathan’s 7th and 8th dive went GREAT! He is having a BLAST in Irvine with Owen. He is so excited to be on an [...]

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I’m going to quote from Amy’s blog:

Today, Melanie over at Better Than Normal posted “Everything Out On The Table”. She’s overwhelmed, depressed, and coming to the realization that she’s “not the super mom she wanted to be.”
Last week Katy over at [...]

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Owen and Nathan are on their way to Irvine right now for Hbot take 3. I finally accepted that I’m, well, too pregnant to keep running around. So Owen was wonderful in being wiling to step in and completing this treatment with Nathan. He took his whole office with him [...]

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That’s the woooooooooooord of the day……….exhaustion.
It’s been a rough couple of days. We took Nathan to see Dr. Feldman first thing yesterday morning and she said he has lots of congestion in his nassal passageways and throat. That’s why he was crying in the chamber. So we [...]

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Maybe I jinxed myself. Yesterday I mentioned how well Nathan was doing with his Hbot. Because today, it was a total disaster.
We put Nathan in the chamber – as usual. Everything was the same. Then about 15 min’s later Kathie, Nathan’s nurse, went to find me [...]

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We’re finishing our 2nd day of HBOT and it’s going good so far!
Last night went well – nobody disturbed us where we parked. Today we got permission to park outside of the therapy center so we’re excited about that! I don’t think I could’ve handled another sleepless night. [...]

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I’m writing this from my phone so I’ll keep it short and sweet.
We’re back at the California hyperbaric Center to continue hbot/ suit therapy after Nathan’s sick remission. We made it early this morning without any problems. Nathan did 2 dives today, but no suit therapy – that starts [...]

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I ordered Belle’s crib bedding set, and seeing this picture of Nathan reminded me of him in his crib way back when.

Setting up the Bellemobile reminds me of Nathan when he used his bliss blue stokke.

The thing on his head is the external shunt. This reminds me [...]

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My great friend Amber, Brandon’s mom, is my inspiration for today’s post. She has walked this journey with me from the very beginning, and has been a wonderful friend and support for me all these years. I love her attitude and her perspective.
Talking about perspective, [...]

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My brain’s a bit rambunctious today. I have a whole bunch of stuff I want to talk about and I just don’t know what to pick. So I’m going to say a bit of everything.
* I got caught playing the “doctor switcharoo” game. I’ve been trying [...]

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This morning I managed to drag my tired butt downstairs before Owen put Nathan on the bus. I found him wearing pants that were way too short (just under his knees!) and socks that were MINE. Yes, you heard it right, Owen somehow though that those socks were [...]

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The only makeup I own was given to me by my then 10 year old niece (who is now 13)
I own 4 pairs of shoes – tennis shoes, Birkenstocks, fuzzy merrels for when it’s cold, and uggs for when it’s colder. That’s my entire shoe repertoire
My purse is nathans diaper [...]

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We saw my two little brothers over the weekend. Esteban was PHENOMENAL with Nathan. He got down on the floor and played with him any way he could. When we put Nathan on his belly – Esteban got on his belly. When Nathan was on his [...]

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…is leading us to the California Integrative Hyperbaric Center. Tomorrow. Yes, I mean like, Nathan will be finishing his first Hyperbaric dive in 12 hours. I’m a bit stunned by the speed of it all, and excited. Very excited.
I’ve posted here how much I’ve wanted Nathan [...]

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From Random

My favorite part of the day has rapidly become Nathan’s night-time routine.
It used to be that he would get a little cranky in the bath, or when I was trying to give him a massage.  If I even tried touching his back, he would start whining.
Since we’ve returned from [...]

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Today we are going to have a very special interview…with Mr. Nathan himself! Even though Nathan cannot speak with words, he speaks with his eyes and body and actions and sounds and with his very soul.
As he is asleep right now we will just have to imagine he is [...]

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I read this blog post today and it completely captured what I felt about Belle.
It was really beautiful and I think relevant not just to SN kids but life in general.
All of life is fragile and uncertain

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…was just another lazy Sunday. I stayed off my PC until now (wohoo!) slept in (thanks Owen!) and watched a lot of Heroes. Picked up toilet paper and a little heater for the igloo (otherwise known as my house) and made pancakes for dinner for Nathan (but Belle [...]

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Now that I’m home and hormone crazy, my nesting instinct is on overdrive.  So I decided – it’s time for a makeover.  Since Nathan was born, my house has steadily gone downhill.  We haven’t paid any attention to it and has gotten uglier and uglier.  Now that I’m in a [...]

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A few people emailed me saying the code for the “Pray for Head Control”  button didn’t work.  I updated it here:
<p><a href=”http://www.prayfornathan.org/blog/?page_id=1715“><img src=”http://www.prayfornathan.org/images/nathan1.jpg” alt=”Pray for Nathan” width=”190″ height=”246″ border=”0″></a></p>
Hopefully this one will work.
If you don’t know what I’m talking about, see this post:  Head Control for Nathan
THANK YOU SO MUCH [...]

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If you have written me an email in the past 6 weeks and haven’t heard back from me – I am so sorry! I have been so overwhelmed and am trying desperately to catch up.
As usual I was trying to systematize my “catching up” process and thought – hmmm – [...]

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Oh I’m so glad it’s Friday. Here are some confessions:
* I never make my bed in the mornings (or the afternoon or evening).
* I have my nails done maybe twice a year (on a good year) and I go to the dentist every 5 years [...]

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…I wonder what he would say?
* He you b#($tch give me some ice cream and chocolate NOW!
Or
* Can we go sky diving mommy please?
Or
* Mommy can we live in the swimming pool?
Or
* Daddy gave me cookies last night (busted!!!)
Or
* Mommy we’ve been home 3 whole [...]

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Even though we are happy to be home I have to admit that I am really missing parts of our life in Chile. I miss the wonderful friends that we made and all of the incredible experiences we had together. Both Nathan and I miss his teacher Pao [...]

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And here are the last pictures from our trip. I hope from seeing these pictures you can understand more about my recent realizations about my life in Oz.

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Here are pics of our visit to Tayrona National Park

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Nathan and his best friends Catita and Vicente:

I’m going to be catching up with all of our photos in the next few days

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We are back in Barranquilla now, which is the city that we flew into and will be flying out of in Colombia. We’ve done everything we had to do and now it’s time to go home. We have some issues with flights so we don’t yet know when [...]

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My token appearance to wish everyone a Happy New Year! We have no phone access so I can’t call anyone (sorry mom) but I am thinking of everyone and wishing you all a happy New Year.

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Dear Friends,
Internet access has been tough in Colombia but we are still here!
I know I owe a lot of emails but I promise to catch up when we get back home!
In the meantime, here’s an AMAZING article that brought tears to my eyes:
Special Needs Santa gives back
(Daniel lives in the [...]

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I’m not sure how much internet access I’m going to have in Colombia, so I’m going to write a last post before we jump on the plane tomorrow. Since I may not have a chance to say this later:
HAPPY HOLIDAYS!
I am so grateful to all of you who have [...]

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Today I had my 20 week OB appointment. The news is…Everything is GREAT! Belle looks SO GOOD. She has grown, her measurements are exactly where she needs to be for her gestation age, her heart is strong and steady. One cute little tidbit – her femur [...]

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So I haven’t posted for like 2 whole days because…
…I’ve been on the phone day and night fighting with Fedex to release our package of supplements
…Taking Nathan to the doctor, the acupuncturist, the BodyTalker, CME, school, and the mall to go xmas shopping
…Out with friends for a little Xmas party
…Out [...]

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Nathan woke up feeling still crummy and got sent home from preschool because of severe whinyness.  I was trying really hard to take him to a specific doctor but I wasn’t getting through.  Finally I conned one of the nurses into giving me his cell phone number and left him [...]

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It’s been a crappy day. Nathan doesn’t want to eat, is barely drinking, and only wants to watch TV. He’s not running fevers or vomiting so I’m just letting him be.
In the meantime, I discovered Graboid. While he was napping I was stressed and needed something to [...]

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So here it is, midnight, and I have a hairy munchkin sitting on my lap. Why is he up so late, you may be wondering? I wondered the same when I heard him crying loudly, which was pretty unusual for him. So I went in his room [...]

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Today, Lucky’s new moms, Paola and her sister Carolina, picked him up. I have to admit he took a piece of my heart with him. What a week this puppy gave us – from the highest of highs to the lowest of lows. I picked up [...]

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…for a reason. I’ve always firmly believed that, and now I’m even more convinced than ever.
Let me tell you a couple of stories. The wonderful Cybell started reading this blog some months ago. She found our blog through Sonia’s (Mamaterapeuta’s) blog. When she found out I [...]

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I’ve been thinking of life and luck today. How lucky to be Nathan’s mom and to get to share his life. How lucky to have a little baby girl on the way. Lucky to have the wonderful friends and family that I have. Lucky to [...]

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