A little piece of heaven » medek http://www.prayfornathan.org/blog Life with holoprosencephaly Wed, 08 Feb 2012 01:22:13 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 Medek http://www.prayfornathan.org/blog/medek-3.html http://www.prayfornathan.org/blog/medek-3.html#comments Fri, 16 Sep 2011 01:33:34 +0000 Marcela http://www.prayfornathan.org/blog/?p=3397

Of all of the therapies we’ve tried out, I like Medek the most. To me it makes the most sense and seems to have the most potential to help Nathan with his gross motor skills.

For close to a year now we’ve been working on a daily home program with him. Juan Mario, his home Medek therapist, is absolutely wonderful. Nathan loves him and works hard for him. Very very slowly, snail pace slowly, Nathan has been getting stronger. I notice this in little ways..for example, when I take him to his cousin’s house, he wants to stand up and watch them play. He can now stand, with me supporting him at the waist, for about 10 minutes at a time. His head control is a little bit better, his trunk control also better.

What I’ve finally realized is that this will be like the feather and the stone. If we keep at it, day after day, month after month, year after year, eventually the feather will make a significant mark on the stone. I do believe this will take years and years but if we continue, I KNOW Nathan will have more strength and control of his body.

Most importantly, for right now, it is physical exercise, which he needs. He enjoys it. It keeps him healthy. And it is sustainable, as we do it from home. All things I like.

]]> http://www.prayfornathan.org/blog/medek-3.html/feed 1 A budding sitter http://www.prayfornathan.org/blog/a-budding-sitter.html http://www.prayfornathan.org/blog/a-budding-sitter.html#comments Tue, 23 Nov 2010 00:45:18 +0000 Marcela http://www.prayfornathan.org/blog/?p=2674

By the time I came to my senses and filmed this, he’d been holding himself up for about 10 minutes. I know I know I’m always full of excuses, but I’m slow like that, and only come to my senses when it’s almost too late :-)

This, my friends, is the result of 6, yes 6, medek sessions in New York. I tried this a few weeks ago – nothing, he just collapsed forward or to the sides. Today, he did about 8 minutes without falling, and about 5 sessions fluctuating between 2 and 8 minutes. Joy joy joy!

He’s sitting on a balance board, which allows me to make very very slight corrections if he’s loosing balance. At first I had to correct him a lot, towards the middle almost not at all, at the end a bit more because he got tired.

If you’re wondering why I keep putting my face or hand in front of him – it’s to get him to sit up straight so he can watch his TV over my face or hand….sneaky sneaky :-)

Tiny tiny tiny steps…moving along…joy joy joy!

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