Today we had our first appointment with an Anat Baniel Method therapist in the San Diego area. We left at 9:30 am after Nathan’s morning therapy and drove straight without stopping to La Jolla. Nathan watched his new favorite movie n the car – Alice in Wonderland. Don’t ask me why but he just LOVES [...]

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Let’s start with a few laughs: Did you notice how Jackie’s entire body fits in Lucas’ mouth?  At some point today Lucas picked Jackie up by the neck and carried him outside.  How cute is that! Today we woke up late because of DST so things started off pretty hectic.  After Nathan’s PT with Julie [...]

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I talked to a lady today who is a BodyTalk instructor.  I’m going to be taking a class to learn how to use BodyTalk so I can muscle test Nathan every day and find out what his daily needs are.  The first class will be next Sunday.  I am excited! Lauren was raving about BodyTalk [...]

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When we saw Dr. Kenny I brought her a long list of questions / treatments so she could test Nathan. Honestly, I was full of ideas/expectations.  In fact I was so sure that I had gone ahead of myself and made some appointments for the coming weeks.  I set him up for Tomatis, Intensive Therapy [...]

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On Saturday we went to our ABR satellite training. Unfortunately we failed all the exercises we got the first time around and have to redo them all. The primary reason is because Nathan’s been so sick we haven’t really done enough ABR. We got a refresher of the exercises with a few modifications to make [...]

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I’ve been thinking a lot about closure. About how I need closure to Nathan’s “sick a lot” days. About how I need closure to my earlier “do a lot of everything but not enough of anything” approach. And most importantly, I need closure for the things that happened to Nathan when he was just born. [...]

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After a lot of reflection I realized that Nathan’s schedule needs to be balanced between rehabilitation and enjoyment. It can’t be all fun and no play. We want our life to be enjoyable, not torture. So I reorganized his schedule: From 1-22-09 The stuff in brown is appointments where a therapist or teacher is involved. [...]

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…at the end of the tunnel. Nathan is healthier. No more puke, no more diarrhea. A little snot, not so bad. He’s eating like crazy, happy, content. I smell health looming over the horizon. Can it be? And energy. For the last 2 days, I’ve had energy again. I feel balanced. I feel peaceful. Amazing, [...]

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I’ve been giving some thinking about our plan for Nathan’s therapies / well being this year as it’s the New Year and time to look at everything with fresh eyes. Also, next month we will have Nathan’s first IEP meeting and the slippery slope of preschool and school district therapies will begin. I could really [...]

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Well guess who’s as addicted to Scrubbs as I am? Yes, you got it…Mr. Smiles. He was in STITCHES today watching Scrubbs. So first of all, thanks to everyone that commented or emailed – We love you guys! I read all your comments and emails to Nathan and we were both happy to know that [...]

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Today was our 2nd day with the Australian Institutes for the Achivement of Human Potential people. I can’t say enough how thoroghly and completely impressed I am with them. Today I am exhausted and have an early morning tommorrow, so I won’t say too much, but I will tell you that things are about to [...]

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The other night I woke up in the middle of the night to find myself humming, humpty dumpty sat on a wall, humpty dumpty had a great fall, all the kings horses and all the kings men, couldn’t put humpty together again. It took me several days to understand the significance of this waking dream. [...]

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In his speech therapy, Nicky, Nathan’s wonderful therapist, is teaching him how to make choices and make his needs known. Obviously this is just the very foundation of communication but it’s a start! I wanted to share videos of our session today. Okay so here’s how it works. First she presents him with two choices: [...]

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Okay these videos are primarily for the ABR team in Canada to check and make sure we’re doing things correctly.

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We’re in the car driving back to Vermont to catch our flight home. Nathan is in the back squealing with delight as he watches Lilo & Stitch. I’m afraid we’ve created a monster – to get him through the week of confinement and training he had a DVD screen stuck to his face at all [...]

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Sorry, no pretty pictures today. It has been a long hard day. We had our evaluation with Leonid Bylu, the founder of ABR. I’m going to post the transcript of the meeting. As you read, most of it won’t make much sense. Later on, when I get the video of it, I will post some [...]

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Another fascinating day in ABR land. Today we had the evaluation with Gavin who showed us all about what’s wrong with Nathan’s little body. On the one hand it was awful to hear about everything else that’s wrong with Nathan. We thought it was just his brain, now we’re finding out his structure is all [...]

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Today we finish our 3rd day of ABR training. I finally feel I am beginning to grasp the concept and the technique. It’s a very structured, almost mathematic approach, so it’s taken me some time to understand. We practiced on Nathan today. He was mostly okay with the treatment but after a few minutes he [...]

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Yesterday we had our ABR presentation and today our first training. They have explained to us that for our kids to develop better function their structure has to improve. The way to improve their structure is to apply energy to different areas of their body and this energy will help to restore and improve the [...]

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We are getting ready to take off to Canada tommorrow to receive training in Advanced Biomechanical Rehabilitation. And all I can say is that I am EXCITED. I am so happy that we will have this opportunity to practice this treatment on Nathan. And I am excited to meet other families. We will be meeting [...]

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Nathan started HBOT today! We are so excited! He tolerated 30 minutes in the chamber today, on his first try. The universe has been insisting over and over that we need to try this therapy for Nathan so what an we do but listen and try. Please pray that this works for our little piece [...]

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I made a little map of the therapies I want to do with Nathan, their cost and duration. None of these are covered by insurance. I need help trying to figure out what to do and when! Of course our resources are limited so we have to choose what we do wisely. Here are the [...]

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This is the greatest, most awesome walker I’ve ever seen. This was the first day he tried it. I’ll take another video tommorrow to show you how much better he’s doing in it! And there are some very cute PHOTOS HERE.

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This is day 3 of Napa and Nathan is doing great! He is working really hard and tolerating the 4 hours of therapy. Here are a couple of pictures: Here are some videos:

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