http://www.prayfornathan.org/blog/my-sisters-keeper.html Life with holoprosencephaly Thu, 02 Feb 2012 01:58:52 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.prayfornathan.org/blog/my-sisters-keeper.html/comment-page-1#comment-17096 Melanie Tue, 16 Mar 2010 14:24:54 +0000 http://www.prayfornathan.org/blog/?p=1882#comment-17096 This was a beautiful post, I started reading your blog over a year ago when I was pregnant with my boys. I have twins that just turned a year old and one of my sons was diagnosed with holoprozencephaly and hydrocephalus before birth. Your blog was what gave me hope at 24 weeks gestation that I would have 2 healthy sons. I delivered at 30 weeks and my little Gabe has struggled 6 weeks in the NICU, 5 surgeries, countless tests, and hundreds of thousands in medical bills, thank goodness for insurance. But I have made it, we all made it, their birthday has been my marker for success because the doctors were always so negative about Gabe's survival, but he is still here still fighting. I had to let go and breathe a long time ago and just put it in God's hands. Being a single mother of twins is hard but a single mother of twins with a child with HPE is very overwhelming at times. Your blog has given me so much over the last year, through you I found the Carter Center and have just found hope, I pray for you and your family everyday. Thank you This was a beautiful post, I started reading your blog over a year ago when I was pregnant with my boys. I have twins that just turned a year old and one of my sons was diagnosed with holoprozencephaly and hydrocephalus before birth. Your blog was what gave me hope at 24 weeks gestation that I would have 2 healthy sons. I delivered at 30 weeks and my little Gabe has struggled 6 weeks in the NICU, 5 surgeries, countless tests, and hundreds of thousands in medical bills, thank goodness for insurance. But I have made it, we all made it, their birthday has been my marker for success because the doctors were always so negative about Gabe’s survival, but he is still here still fighting. I had to let go and breathe a long time ago and just put it in God’s hands. Being a single mother of twins is hard but a single mother of twins with a child with HPE is very overwhelming at times. Your blog has given me so much over the last year, through you I found the Carter Center and have just found hope, I pray for you and your family everyday. Thank you

]]> http://www.prayfornathan.org/blog/my-sisters-keeper.html/comment-page-1#comment-16980 Tita Tita Mon, 08 Mar 2010 22:30:07 +0000 http://www.prayfornathan.org/blog/?p=1882#comment-16980 I will remind you. Don't worry. I will remind you. Don’t worry.

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