http://www.prayfornathan.org/blog Life with holoprosencephaly Thu, 02 Feb 2012 01:58:52 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.prayfornathan.org/blog/my-story/comment-page-1#comment-3668 Uknown Fri, 17 Apr 2009 19:37:49 +0000 http://www.prayfornathan.org/blog/?page_id=248#comment-3668 I have a little sister age 12 who was supposed to die after 1 month and then it was two years. She is a miracle. she can't walk, talk but she can make sounds and show her affection. She used to have up to 100 seizures a day now because of medicine only 2-3. I am one year older than her, she was diagnosed with HPE in Maryland after a procedure for her cleft pallete, doctors took two long and she lost oxygen to her brain, she was three months then. When my parents got home she suddenly couldn't sit up any more. Her name is Sierra Faith Zimmerman which translated in japanese, which is the place we were stationed during the time, Mountain of Fatih. I truly belive god has blessed us with her, she is the center of our love and always shall be. I have a little sister age 12 who was supposed to die after 1 month and then it was two years. She is a miracle. she can’t walk, talk but she can make sounds and show her affection. She used to have up to 100 seizures a day now because of medicine only 2-3. I am one year older than her, she was diagnosed with HPE in Maryland after a procedure for her cleft pallete, doctors took two long and she lost oxygen to her brain, she was three months then. When my parents got home she suddenly couldn’t sit up any more. Her name is Sierra Faith Zimmerman which translated in japanese, which is the place we were stationed during the time, Mountain of Fatih. I truly belive god has blessed us with her, she is the center of our love and always shall be.

]]> http://www.prayfornathan.org/blog/my-story/comment-page-1#comment-1593 vanessa Fri, 13 Feb 2009 17:31:25 +0000 http://www.prayfornathan.org/blog/?page_id=248#comment-1593 This is an incredible testimony of gods love for us. I also have a daughter with holoproencephaly on the left part of her brain. She is a beautiful child with a strong will. She is 2 years and a half right now, still not walking, but therapists and i are working on it. Unlike nathan, the cleft in her brain disabled function on the right side of her body so she is still able to do a few things on her own. Im so glad to know that it wasn't my fault with the way i carried the pregnancy and that it is something that happens spontaneously. I admire your strength and courage. Nathan will remain in prayers! This is an incredible testimony of gods love for us. I also have a daughter with holoproencephaly on the left part of her brain. She is a beautiful child with a strong will. She is 2 years and a half right now, still not walking, but therapists and i are working on it. Unlike nathan, the cleft in her brain disabled function on the right side of her body so she is still able to do a few things on her own. Im so glad to know that it wasn’t my fault with the way i carried the pregnancy and that it is something that happens spontaneously. I admire your strength and courage. Nathan will remain in prayers!

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