This is a fabulous video. This is a treatment we’ve considered for Nathan but, as much as we’d like to, we can’t afford to do everything. So for this year we are not planning any stem cell treatments.
I am so happy for these boys, for the benefits they gained from the treatment, and for their parents for making the effort!
Nathan and Owen surprised me by arriving home late last night! I had just gone to sleep when they snuck into bed with me. It was glorious snuggling up with them after 1 week of not seeing them!
This morning we went to breakfast and afterwards, Nathan and I went to visit his cousins. When we got there, the boys were riding their bicycles outside.
Nathan was SUPER excited and just dying to go play with them! He stood up and supported his weight and was trying to hard to walk/run after them. I was SHOCKED at how well he was standing and that he was trying to step and at how much he wanted to ride a bicycle with them. The treatment is really working, I’ve never seen him bear weight with minimal assistance for such a long time!
He was also fascinated by his uncle Brian, who was working on his car. I had no idea he was into car’s but he had a hard time taking his eyes off him while he worked.
My baby is not a baby any more – he’s a boy now! Into cars, bicycles, playing outside, fixing things. I couldn’t believe my eyes. Disabled or not, he’s into the exact same things that his cousin, who is the same age, is into!
I thought I’d have more time before I started the Bike Funding Fight, but I was wrong. Sounds like I have a project for next week I can see him already!
I know this week I haven’t said much about the star of this blog: Nathan. The reason is – I haven’t seen him all week! Owen and Nathan have been in Irvine doing the HBOT and Suit therapy intensive while I’ve been home all week – resting, running errands, catching up with work, decorating the house.
Owen calls me a few times a day and puts Nathan on the phone – he always sounds SOOO happy! Using blabberspeak, he tells me all about his day, he complains when daddy’s not feeding him enough, he coos and aaahhhs after dinner when his belly is full and he’s happy and content.
Every day after therapy, they go to the Irvine Spectrum Mall, where according to Owen Nathan has become a super star. Since they’ve been there almost every day for 3 weeks, most of the people working at the stores, restaurants, the carousel know him and greet him by name. He has a personal chef at Johnny Rockets and California Pizza Kitchen, the carousel people let him ride for free, and the game store people all love hanging out with him while they play games. That little boy wins everyone over wherever he goes!
He managed to fall asleep again while in therapy – this time while George worked on getting him to stand! Unfortunately I have no pictures as Mr. Owen is a slacker. I was reading a support group and they were talking about how exhausting HBOT can be – now imagine combining hbot plus suit therapy plus partying with daddy!
Nathan has completed 31 dives and 44 hours of suit therapy. Owen’s goal is to complete the treatment next week. I’m so glad – I miss my boys!!! Tomorrow they are coming home for the weekend – hallelujah!
I promise to take some pictures/videos over the weekend, since Owen is depriving us all.
In the meantime, you’ll have to put up with me talking about all sorts of random stuff – sorry!!!