http://www.prayfornathan.org/blog/today.html Life with holoprosencephaly Thu, 02 Feb 2012 01:58:52 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.prayfornathan.org/blog/today.html/comment-page-1#comment-16505 Jessica Sat, 30 Jan 2010 14:30:43 +0000 http://www.prayfornathan.org/blog/?p=1751#comment-16505 I just found out that my unborn baby has Holoprosencephaly. I am so scared, I am 20 weeks a long she's in a low bar stage. From what they tell me... there is no hope. I did start getting a few tests done just to look for that glimmer of light. I am only 27 years old, newly wed and this would be our first child. I know it was nothing we did wrong, there is nothing we could have changed but, it still hurts. We found all this out yesterday. I am just scared that I'll never get to see my baby girl. I just found out that my unborn baby has Holoprosencephaly. I am so scared, I am 20 weeks a long she’s in a low bar stage. From what they tell me… there is no hope.
I did start getting a few tests done just to look for that glimmer of light. I am only 27 years old, newly wed and this would be our first child. I know it was nothing we did wrong, there is nothing we could have changed but, it still hurts.
We found all this out yesterday. I am just scared that I’ll never get to see my baby girl.

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