http://www.prayfornathan.org/blog/whats-up.html Life with holoprosencephaly Thu, 02 Feb 2012 01:58:52 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.prayfornathan.org/blog/whats-up.html/comment-page-1#comment-16001 kerri Fri, 22 Jan 2010 09:45:59 +0000 http://www.prayfornathan.org/blog/?p=1713#comment-16001 Hey Marcela, I know its been ages since I e mailed you guys. Things have been super hectic here as its summer holidays so our older 2 girls have been off school and very demanding of my time!!Billee had a feeding button put in, started the ketogenic diet and more recently had a burn around her peg site due to the removel of a skin tag going wrong! Due to all of this our AIAHP and ABR has severely suffered! We go on holiday next week just for 8 days and when we get back we are back on track! Billee is doing well otherwise. She is very alert and responsive and healthier now she is properly hydrated! I'm sorry to hear Belle may have Downs but I agree with every thing you have said about this. She is a beautiful little person and if any one can help a baby with special needs its you hun! I will pray for Belle and also for Nathan and his head control. Speak soon. Love & Hugs Kerri Hey Marcela,
I know its been ages since I e mailed you guys. Things have been super hectic here as its summer holidays so our older 2 girls have been off school and very demanding of my time!!Billee had a feeding button put in, started the ketogenic diet and more recently had a burn around her peg site due to the removel of a skin tag going wrong! Due to all of this our AIAHP and ABR has severely suffered! We go on holiday next week just for 8 days and when we get back we are back on track! Billee is doing well otherwise. She is very alert and responsive and healthier now she is properly hydrated! I’m sorry to hear Belle may have Downs but I agree with every thing you have said about this. She is a beautiful little person and if any one can help a baby with special needs its you hun! I will pray for Belle and also for Nathan and his head control. Speak soon. Love & Hugs Kerri

]]> http://www.prayfornathan.org/blog/whats-up.html/comment-page-1#comment-15879 Karym Wed, 20 Jan 2010 19:43:40 +0000 http://www.prayfornathan.org/blog/?p=1713#comment-15879 Que bien que todo esta tomando su ritmo!!, y que alegría que de saber que existen personas que quieren ayudar para hacer feliz a mi niñito!!!, que alegre estoy. Todo va a resultar bien!!, yo rezaré por ustedes y hoy en especial por Belle para que la encuetren estupenda!!! Besos, Karym Que bien que todo esta tomando su ritmo!!, y que alegría que de saber que existen personas que quieren ayudar para hacer feliz a mi niñito!!!, que alegre estoy. Todo va a resultar bien!!, yo rezaré por ustedes y hoy en especial por Belle para que la encuetren estupenda!!!
Besos,
Karym

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