…or at least, that’s why Nathan’s doctor thinks I am.
Let me say this first. I love Nathan’s doctor. She is the best doctor I know. She’s a House kind of doctor. She’s a great diagnostician. She is smart and gutsy and almost always spot on. She has kept Nathan out of the ER numerous times and has always been a great advocate for him. When we have a crises, she’s the only one I trust.
But after she told me I would go to hell for taking Nathan for stem cell therapy, I decided to keep things very basic with her … I take Nathan to her when he is sick, I don’t tell her more than I have to, and I keep things really simple. When she tells me it’s time to vaccinate Nathan, I tell her I’ll have his dad bring him back because he’s better with shots than I am…and then we never show up. For the last 4 years, this has worked for us. She’s an integral part of Nathan’s team and we are appreciative of her for helping us during many crises.
Today I had a brain fart. She asked me what meds Nathan was on, and I said happily, other than his supplements, he is med free! “What supplements?” She asked. And I brain farted again. “Oh, you know, his B6, B12, D, C, homeopathics, fish oil, you know, all the regular stuff”. She looked at me strangely. “And who gave him all these supplements?” “The chiropractor gave him some, his DAN doctor gave him others, the homeopath gave him another, the nutritionist gave us the new formula we’re using.”
Then she went red in the face. And started yelling.
“Do you know that Vitamin D in excess quantities can become toxic and cause increased ICP? And how do you know what’s in these supplements? Did you know that supplements in the US are not regulated? That many supplements are made in China with sub-par ingredients? How could you give him all this without checking with me?” Inside I was thinking, “Because I only use the highest quality supplements. Because he’s on dosages too small to make him toxic? Because I didn’t want to hear you scream at me”
She was furious. And Nathan laughing at her. Hysterically. I’m not kidding. She yelled, he laughed.
So I said to her, Doc, Nathan is mostly very healthy, look he’s on no meds, hasn’t been hospitalized, he’s in great shape, you know what an accomplishment that is, so what I’m doing is working.
Her response, “He’s been healthy! He would’ve been healthy without all this junk. You’ve been flushing money down the toilet. You should’ve been using that money to pay for insurance.”
At which point I came quite close to losing it. Because we HAVE insurance. And we pay a FORTUNE for it. But I kept it together and corrected her on the insurance issue.
And I kindly asked her, “So Doc, what would you to do help Nathan? What would you do to boost his immune system? To improve his muscle tone? To improve his digestion and respiratory system?”
She turned away and started typing into her computer. Then she told me she would give us a referral to an ENT, to another orthopedist, and to a nutritionist. Even though I told her that we HAVE a nutritionist. I even showed her Kelly Dorfman’s site, where it is apparent that she is quite a reputable nutritionist, and proceeded to say that how did I know she wasn’t making everything up that was on her site? And when I told her we have Nathan on a Metagenics formula, she said it was a scam, that someone tried getting her to sell metagenics and that the practitioners earn a percentage. Except I don’t buy the formula from Kelly, I buy it from a local shop that sells it. Anyways, I told her that if she could tell me of a formula that is gluten casein free and has lower sugar content, I was all for it. So she asked me why it had to be gluten casein free. And I bit my tongue instead of telling her of the DAN testing that we’d done to tell us about Nathan’s gluten and casein intolerance. Because I’ve never told her he’s on a GFCF diet. Because maybe she would’ve slapped me at this point?
Anyways, she also told me we’d do bloodwork to check for different levels of vitamins, and an X-ray of his nasal passageways. And she’d write an order for his latest vaccines.
At which point she walked out to write the orders. And I took advantage of the moment to grab my boy and run run run as fast as I could away from that office. If we’d been in a hospital I’d have been AMA.
So I’m an idiot, for trying to help my son. I’m an idiot for not giving him pediasure. I’m an idiot for using supplements that have been proven to be helpful for children with brain injuries. I’m an idiot for using alternative medicine. I’m an idiot for taking Nathan to a chiropractor and for working with a nutritionist remotely.
Honestly, I was kinda laughing inside me. Because she doesn’t even know the half of it. I barely scratched the surface with what I told her. Hehehe.
I know it sounds weird, but I didn’t take offense. She was trying to protect Nathan, as best as she knows how. She was making sure we weren’t giving him anything that could be harmful.
So now I am trying to decide. Do I need a new doctor? What do you guys think? I know it sounds like a stupid question given the fact that she pretty much berated and insulted me for 30 minutes straight. But she IS an excellent doctor. Think of House. Great diagnostician, awful bedside manner. Would you fire him as your kid’s doctor, or keep him?
Oh, and the good news of the day – she said even though Nathan is on the skinny side, he looks very well nourished and she didn’t think we had to talk about a G-tube again for a while!!! So we can set that aside for now!